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Bev Foster • January 31, 2013

A Music Resource for Dementia Care

Connecting Through Music with People with Dementia: A Guide for Caregivers Robin Rio, Jessica Kingsley Publishers, 2009 (143 pgs) Available at www.amazon.ca $25.60 paperback Recently, I came across a user-friendly resource for health care providers, family and volunteer caregivers of persons with dementia, who want to more effectively integrate music into their care. Written by music therapist Robin Rio, she intends the book to be used as “ an interactive tool in creating a musical atmosphere for time shared with someone who has dementia.” Her passion and experience with the dementia population is evident through personal anecdotes and through practical tips for caregivers. For example, she offers 10 ways to make a melodic connection, 15 ways to make a rhythmic connection. And you don’t have to be musician to use music. She says “ it’s not the level of musicianship or the quality of your voice that makes for the most meaningful interactions. It’s a sense of fun and engagement ”. Rio recommends live music-making “sessions” which provide optimal connection. Sessions may last 15-30 minutes including an opening song, instrument playing, movement, singing. She coaches the caregiver on a variety of responses and reactions that may be encountered and how to evaluate them. She also recommends core songs and includes a song list prepared by the American Association of Music Therapy (Jackert et al, 2003). This list was compiled by a group of music therapists with extensive experience doing music in the eldercare population and includes a table of frequently requested songs. One of the key tips Rio offers the caregiver is to look for songs that were popular in the decade when the person with dementia was a teenager and young adult. According to research, most older adults show preference to music at this time in their lives (Peters, 2000). Another important tip she cites (Clair, 1996) is this: singing in a lower key with music that has been slowed down makes it much easier for the person with dementia to be able to participate. And this advice by Rio particularly caught my attention reflecting the compassionate and practical help you will receive from this book: Even if someone is unable to respond, unless there is profound hearing loss, he is still hearing your voice. Even with a hearing loss, leaning in close to someone and singing to him will generate warm feelings and enhance the mood and environment. There are vibrations produced when we sing which can be felt in the body of both the singer and the listener. The only time it’s important to not sing is if the music-making seems to disturb or distress the person you are caring for in any way. References: Clair, A.A., (1996). Therapeutic Uses of Music with Older Adults. St. Louis, MO: MMB Music. Jackert, L. et al, (2003). Music Therapy and elderly Persons: Innovative Approaches. American Music Therapy Association Pre-Conference Institute Publication. Silverspring, MD: AMTA Peters, J.S., (2000). Music Therapy: An Introduction. Springfield, IL: Charles C. Thomas

By Shelley Neal March 8, 2024
I initially trained with MUSIC CARE to work with Seniors in Long Term Care who were experiencing dementia and Alzheimer’s Disease. This is the path I travelled with my mom. My training with Music Care and Room 217 supported capacity building in selecting music that was played on my harp or chosen recorded music. The music centered on the care of the individual and their specific needs. My job was to determine the individual’s specific and select music to address these needs. The music selected helped to build community, support sleep, talk about life experiences, create a background landscape of sound, support connection to decrease isolation and loneliness, as well as coming alongside people dying. My training with Music Care helped me understand how to support people “where they were” physically, emotionally, and spiritually. Through using beat, tempo, melody, and timbre, I could cater the music and desired support required for individuals or small groups. My profession is teaching. I am a special education teacher and use music in my primary teaching as a method for learning, practicing language skills, transmitting information about science studies or math equations, as well as having fun and creating our own songs. My teacher toolkit married exceptionally well with the knowledge and skills provided by the Music Care Certification training. Recently, my work with students has involved individual programming for the medically fragile children and the palliative children. I use music (repeating the chorus several times) to engage and connect with the kiddos. We use music to "talk" about feelings (our communication is through eye gaze, eye blinks, and squeezing hands), and content material. I use music to enjoy our relationship of being together. At times, due to medication for seizures, my little ones can be very sleepy. I increase the tempo, engaging in tapping the beat on her hands and using silly action songs. The giggles and wiggles make it magical. I also use music to tell stories (my students have CVI, cortical vision impairment, so visual perception is difficult). This helps the child to engage in the story arch and adventures. Music is my conduit for reaching out and being with the students. Recently, I had the sacred journey of visiting one of my children in ICU at Sick Kids. I was invited to come to say "goodbye". A dear friend who was an ICU nurse in a different department told me (AKA, insisted) that I bring my harp with me. I wasn't sure if this would be appropriate for the family. However, with the permission of the mom, I bravely packed my harp up and took it to the Unit. It was a beautiful evening of talking with their mom and dad about how special their child was in my life. I played the kiddo's favorite songs and then ended with "The More We Get Together". The little one opened their eyes and stared at me. We hugged, and I left. They passed the next morning. I consider this time to be a sacred gift. Music Care Certification has given me the confidence and toolset to work alongside people and to journey together. It is a time a beautiful, difficult, or sacred time that I have been honoured to participate in.  Thank You
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