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Sarah Pearson • May 19, 2015

Topography


Working in end-of-life care is a privilege and an honour. I am often humbled at the ways that families invite me in to share their final hours together. We begin as strangers, but as we introduce music into the relationship, a fast intimacy is established. Music is a spiritual language for many, and these encounters can feel mystical, sacred, and deeply connected. The paradoxes can feel blindingly strong. The searing pain of losing a loved one is as imminent as the flickers of peace, beauty, gratitude and grace that can befall the room of a dying person.

Making sense of suffering, death, and loss is a universal human struggle. For me, songwriting is my natural go-to way that I try to make sense of these mysteries.

Today I’m very happy to announce the release of a short EP of songs I wrote, and recorded here at a local studio in Kitchener, called “ The Earth Was Built For It. ” These are four songs that I’ve crafted over the past 9 months that, to me, reflect deeply the paradoxes I encounter in end-of-life care. They touch upon my own grief journey of receiving a diagnosis of chronic disease 5 years ago, juxtaposed with the gratitude I feel from continually witnessing the more profound suffering of others.

Many of Room 217’s followers and end-users are holding some deep losses. They are family caregivers or health care professionals witnessing some terrible suffering, and processing grief of their own. They connect with Room 217 because they recognize the power of music to find meaning and relationship through this suffering.

It’s for those stewards of grief that I would like to offer the closing track off the album, called “ Topography.” It is a song written from the place of spiritual distress at a loss. It is also written from the place of deep understanding that grief is an organic human experience. While grief shapes us, becoming a part of our emotional and spiritual landscapes, there is meaning to be found in it. “The Earth was built for it…see what you can do with it.”

One of the great privileges of being an artist of any kind is the opportunity to offer healing and empathy through sharing our work. It is the same privilege I feel being invited into the room of strangers to offer music and connection as a music therapist. If you and I can connect today through the sharing of this song, the privilege is mine.

By Shelley Neal March 8, 2024
I initially trained with MUSIC CARE to work with Seniors in Long Term Care who were experiencing dementia and Alzheimer’s Disease. This is the path I travelled with my mom. My training with Music Care and Room 217 supported capacity building in selecting music that was played on my harp or chosen recorded music. The music centered on the care of the individual and their specific needs. My job was to determine the individual’s specific and select music to address these needs. The music selected helped to build community, support sleep, talk about life experiences, create a background landscape of sound, support connection to decrease isolation and loneliness, as well as coming alongside people dying. My training with Music Care helped me understand how to support people “where they were” physically, emotionally, and spiritually. Through using beat, tempo, melody, and timbre, I could cater the music and desired support required for individuals or small groups. My profession is teaching. I am a special education teacher and use music in my primary teaching as a method for learning, practicing language skills, transmitting information about science studies or math equations, as well as having fun and creating our own songs. My teacher toolkit married exceptionally well with the knowledge and skills provided by the Music Care Certification training. Recently, my work with students has involved individual programming for the medically fragile children and the palliative children. I use music (repeating the chorus several times) to engage and connect with the kiddos. We use music to "talk" about feelings (our communication is through eye gaze, eye blinks, and squeezing hands), and content material. I use music to enjoy our relationship of being together. At times, due to medication for seizures, my little ones can be very sleepy. I increase the tempo, engaging in tapping the beat on her hands and using silly action songs. The giggles and wiggles make it magical. I also use music to tell stories (my students have CVI, cortical vision impairment, so visual perception is difficult). This helps the child to engage in the story arch and adventures. Music is my conduit for reaching out and being with the students. Recently, I had the sacred journey of visiting one of my children in ICU at Sick Kids. I was invited to come to say "goodbye". A dear friend who was an ICU nurse in a different department told me (AKA, insisted) that I bring my harp with me. I wasn't sure if this would be appropriate for the family. However, with the permission of the mom, I bravely packed my harp up and took it to the Unit. It was a beautiful evening of talking with their mom and dad about how special their child was in my life. I played the kiddo's favorite songs and then ended with "The More We Get Together". The little one opened their eyes and stared at me. We hugged, and I left. They passed the next morning. I consider this time to be a sacred gift. Music Care Certification has given me the confidence and toolset to work alongside people and to journey together. It is a time a beautiful, difficult, or sacred time that I have been honoured to participate in.  Thank You
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