Blog Layout

Deb Bartlett • April 6, 2018

Sleep Kits For People With Dementia: A Room 217 Caregiver Story

Room 217 CDs make their way into study of The Sleep Kit in New Brunswick

It’s not every day that an order for 60 CDs comes in to Room 217. So when it does, we notice. And ask questions. It turns out that a research team in New Brunswick wants to use our music in a study on sleep disturbances in people with dementia.

Eve Baird studied gerontology at St. Thomas University in Fredericton, and is now working at York Care Centre as a rec therapist in a specialized 24-bed unit where all residents have dementia.

The sleep study idea originated with a paper she wrote in university. She had to address a health issue of older adults, and then to create an innovative solution to go along with it. “I decided to write about dementia to explore the topic further, and found that sleep disturbances were a significant issue for these individuals,” says Eve. “There were not many solutions other than exercising more, reducing caffeine and using medications, so I wanted to look at other options.” Her option was The Sleep Kit.

Eve says while there is a lot of support available for caregivers in NB, there are not many tangible tools for them. “I wanted to try and provide them with some kind of solution.” She says studies in New Brunswick point to lack of tools as a reason for high caregiver burnout.

She decided to pursue the idea of The Sleep Kit, and through York Care Centre, applied for research funding, and was awarded $50,000 from the Centre for Aging and Brain Health Innovation. That amount was matched by the New Brunswick Health Research Foundation. Her co-worker Claire Hargrove, who works in the York Care Centre’s adult day program, is her project partner.

Eve is researching not only sleep disturbances in people with dementia, but in finding a solution to that problem. She will study the effects of consistent use of The Sleep Kit by a care partner before bed on the quality of sleep. A total of 50 participants will be studied; half living in their homes, and half living in institutions.

The funding includes the wearing of a Fitbit that will be worn in the evening and overnight for five days pre-test, and over a period of 30 days. “We will be looking at total sleep time, and nighttime awakenings,” says Eve.

The study will begin in the summer in the community, in the fall in the institutions. There will be one report compiled of all data, and Eve says with the help of Janet Durkee-Lloyd, her professor from St. Thomas who encouraged the idea in the beginning, would love to write a published article in the future.

Working in the afternoon and evenings at the nursing home, Eve has seen firsthand sundowning, and sleep disturbances, “which is exacerbated by other symptoms of dementia,” she says.

“Medication is not the answer for everyone,” she says. “It’s important to look at other options.”

She’s hopeful that regular use of the contents of The Sleep Kit in the evening by a care partner will improve the sleep of the person with dementia. The use of the kit will promote a nightly routine, and social interaction, says Eve. She thinks having a connection is important for not only the person with dementia, but also the caregiver.

The Sleep Kit will include items like lotion, a brush, and one of Room 217’s CDs. The CDs have been designed for use in palliative care, but have other applications, including relaxation and pain distraction.

York Care Centre has Room 217 CDs that Eve “uses all the time. I use them with aromatherapy. They’re great. So these are the ones I want to use (in the study).” While the sleep kits are being studied for this project, Eve hopes that in time, the kits can be individualized and marketed for sale.

Eve says aging “shouldn’t be viewed as a crisis,” and feels the conversation and narrative about getting older needs to change. She feels elder care needs to be less “medicalized and more person-centred.” She’s hoping The Sleep Kits will be a catalyst for that.

Deb Bartlett is the resource lead for Room 217 Foundation. By profession, she is a journalist who has worked in community newspapers in the GTA for 30 years. If you have a story to share about how music has affected your caregiving, email dbartlett@room217.ca.

By Shelley Neal March 8, 2024
I initially trained with MUSIC CARE to work with Seniors in Long Term Care who were experiencing dementia and Alzheimer’s Disease. This is the path I travelled with my mom. My training with Music Care and Room 217 supported capacity building in selecting music that was played on my harp or chosen recorded music. The music centered on the care of the individual and their specific needs. My job was to determine the individual’s specific and select music to address these needs. The music selected helped to build community, support sleep, talk about life experiences, create a background landscape of sound, support connection to decrease isolation and loneliness, as well as coming alongside people dying. My training with Music Care helped me understand how to support people “where they were” physically, emotionally, and spiritually. Through using beat, tempo, melody, and timbre, I could cater the music and desired support required for individuals or small groups. My profession is teaching. I am a special education teacher and use music in my primary teaching as a method for learning, practicing language skills, transmitting information about science studies or math equations, as well as having fun and creating our own songs. My teacher toolkit married exceptionally well with the knowledge and skills provided by the Music Care Certification training. Recently, my work with students has involved individual programming for the medically fragile children and the palliative children. I use music (repeating the chorus several times) to engage and connect with the kiddos. We use music to "talk" about feelings (our communication is through eye gaze, eye blinks, and squeezing hands), and content material. I use music to enjoy our relationship of being together. At times, due to medication for seizures, my little ones can be very sleepy. I increase the tempo, engaging in tapping the beat on her hands and using silly action songs. The giggles and wiggles make it magical. I also use music to tell stories (my students have CVI, cortical vision impairment, so visual perception is difficult). This helps the child to engage in the story arch and adventures. Music is my conduit for reaching out and being with the students. Recently, I had the sacred journey of visiting one of my children in ICU at Sick Kids. I was invited to come to say "goodbye". A dear friend who was an ICU nurse in a different department told me (AKA, insisted) that I bring my harp with me. I wasn't sure if this would be appropriate for the family. However, with the permission of the mom, I bravely packed my harp up and took it to the Unit. It was a beautiful evening of talking with their mom and dad about how special their child was in my life. I played the kiddo's favorite songs and then ended with "The More We Get Together". The little one opened their eyes and stared at me. We hugged, and I left. They passed the next morning. I consider this time to be a sacred gift. Music Care Certification has given me the confidence and toolset to work alongside people and to journey together. It is a time a beautiful, difficult, or sacred time that I have been honoured to participate in.  Thank You
By Julia Cara March 29, 2022
This article was written by Julia Cara, and is part of a series provided by upper year Health Sciences students at McMaster University.
By Bev Foster January 10, 2022
I will never forget the call that came on that cold, crisp January afternoon twenty years ago. I knew it was imminent. I was expecting it and I thought I was ready. But would I ever be ready to say the final farewell to my father?
By Deb Bartlett September 11, 2020
Poodles skirts, saddle shoes, ducktails and fins on your cars. If these words don’t evoke memories and images from the ‘50s maybe this will:
By Deb Bartlett August 28, 2020
Ask people what folk music is, and you'll get a variety of answers. Is it about the music? The lyrics? The song's history? According to Wikipedia's entry on folk music , it's all of those things: music that's performed by custom over a long period of time; that has no known composers; and that has been transmitted orally. It can describe the traditions of the "uncultured classes" and definitely means it's music of the people. And because it's been shared orally, it is music that has a place, or is indicative of a community. In some circles, because folk music tells stories about events and history, it's known as world music. In a dissertation, Rachel Clare Donaldson simply stated "Folk music is what the people sing."
By Deb Bartlett August 24, 2020
As explained in this blog post Not Afraid album, the intent behind the Not Afraid album was not to tell people in hospice palliative care that they needn't be afraid; it was to let them know there are people who love them and are sharing the journey.
By Deb Bartlett August 17, 2020
Room 217 ’s music was designed for use in palliative care. The music is produced at 60 beats per minute (resting heart rate) which has several benefits for the person receiving palliative care. It also aids others in the circle of care. This link will take you to a report that discusses the benefits of music in hospice palliative care .
By Deb Bartlett August 11, 2020
Do you remember where you were the first time you heard them? The Beatles? Had you heard them on the radio? Or was your first experience with The Beatles watching the Jack Paar show, or Ed Sullivan?
By Deb Bartlett July 29, 2020
Room 217’s British Invasion album features 16 tracks of soloists and bands from the U.K. that changed the North American music scene.
By Deb Bartlett July 16, 2020
R-E-S-P-E-C-T. That’s all you need to read and you know the song. In fact, you likely sang it as you read it.
More Posts
Share by: