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By Shelley Neal 08 Mar, 2024
I initially trained with MUSIC CARE to work with Seniors in Long Term Care who were experiencing dementia and Alzheimer’s Disease. This is the path I travelled with my mom. My training with Music Care and Room 217 supported capacity building in selecting music that was played on my harp or chosen recorded music. The music centered on the care of the individual and their specific needs. My job was to determine the individual’s specific and select music to address these needs. The music selected helped to build community, support sleep, talk about life experiences, create a background landscape of sound, support connection to decrease isolation and loneliness, as well as coming alongside people dying. My training with Music Care helped me understand how to support people “where they were” physically, emotionally, and spiritually. Through using beat, tempo, melody, and timbre, I could cater the music and desired support required for individuals or small groups. My profession is teaching. I am a special education teacher and use music in my primary teaching as a method for learning, practicing language skills, transmitting information about science studies or math equations, as well as having fun and creating our own songs. My teacher toolkit married exceptionally well with the knowledge and skills provided by the Music Care Certification training. Recently, my work with students has involved individual programming for the medically fragile children and the palliative children. I use music (repeating the chorus several times) to engage and connect with the kiddos. We use music to "talk" about feelings (our communication is through eye gaze, eye blinks, and squeezing hands), and content material. I use music to enjoy our relationship of being together. At times, due to medication for seizures, my little ones can be very sleepy. I increase the tempo, engaging in tapping the beat on her hands and using silly action songs. The giggles and wiggles make it magical. I also use music to tell stories (my students have CVI, cortical vision impairment, so visual perception is difficult). This helps the child to engage in the story arch and adventures. Music is my conduit for reaching out and being with the students. Recently, I had the sacred journey of visiting one of my children in ICU at Sick Kids. I was invited to come to say "goodbye". A dear friend who was an ICU nurse in a different department told me (AKA, insisted) that I bring my harp with me. I wasn't sure if this would be appropriate for the family. However, with the permission of the mom, I bravely packed my harp up and took it to the Unit. It was a beautiful evening of talking with their mom and dad about how special their child was in my life. I played the kiddo's favorite songs and then ended with "The More We Get Together". The little one opened their eyes and stared at me. We hugged, and I left. They passed the next morning. I consider this time to be a sacred gift. Music Care Certification has given me the confidence and toolset to work alongside people and to journey together. It is a time a beautiful, difficult, or sacred time that I have been honoured to participate in.  Thank You
By Julia Cara 29 Mar, 2022
This article was written by Julia Cara, and is part of a series provided by upper year Health Sciences students at McMaster University.
By Bev Foster 10 Jan, 2022
I will never forget the call that came on that cold, crisp January afternoon twenty years ago. I knew it was imminent. I was expecting it and I thought I was ready. But would I ever be ready to say the final farewell to my father?
By Deb Bartlett 11 Sep, 2020
Poodles skirts, saddle shoes, ducktails and fins on your cars. If these words don’t evoke memories and images from the ‘50s maybe this will:
By Deb Bartlett 28 Aug, 2020
Ask people what folk music is, and you'll get a variety of answers. Is it about the music? The lyrics? The song's history? According to Wikipedia's entry on folk music , it's all of those things: music that's performed by custom over a long period of time; that has no known composers; and that has been transmitted orally. It can describe the traditions of the "uncultured classes" and definitely means it's music of the people. And because it's been shared orally, it is music that has a place, or is indicative of a community. In some circles, because folk music tells stories about events and history, it's known as world music. In a dissertation, Rachel Clare Donaldson simply stated "Folk music is what the people sing."
By Deb Bartlett 24 Aug, 2020
As explained in this blog post Not Afraid album, the intent behind the Not Afraid album was not to tell people in hospice palliative care that they needn't be afraid; it was to let them know there are people who love them and are sharing the journey.
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Articles

Beider, S. An ethical argument for intergrated palliative care. Evidence-based Complimentary and Alternative Medicine, 2(2), 227-231.


Daveson, B., (2001). Music therapy and childhood goals, methods, patient choices and control during diagnosis, intensive treatment, transplant and palliative care. American Music Therapy Association Perspectives 19 (2)


Edwards, A., Pang, N., Shiu, V., & Chan, C. (2010). The understanding of spirituality and the potnetial role of spiritual care in end-of-life and palliative care: A meta-study of qualitative research. Palliative Medicine, 24(8), 753-770.


Herth, K. (1990). Fostering hope in terminally-ill people. Journal of Advanced Nursing, 15, 1250-1259.


Hilliard, R.E. (2003). The Effects of Music Therapy on the Quality and Length of Life of People Diagnosed with Terminal Cancer. Journal of Music Therapy, XL (2), 113-137


Lokker, M.E., can Zuylen, L., Veerbeek, L., van der Rijt, C.C.D., & van der Heide, A. (2012). Awareness of dying: It needs words. Support Care Cancer, 20, 1227-1233.


McCormick, T.R., Hopp, F., Nelson-Becker, H., Ai, A.L., Schlueter, J.O., & Camp, J.K. (2012). Ethical and spiritual concerns near the end of life. Journal of Religion, Spirituality & Aging, 24, 301-313.


Reed, P. (1991) Spirituality & Well-Being in Terminally Ill Hospitalized Adults. Research in Nursing and Health. 10:335-344.


Salmon, D. (1993). Music and emotion in palliative care. Journal of Palliative Care. 9(4):48-52.



Scheiby, B.B. (2005). Dying alive - a transpersonal analytical music therapy approach for adults with chronic, progressive neurological diseases. Pp.178-179. C. Dileo & J. Loewy (Ed.).Cherry Hill: NJ. Jeffrey Books.

Books

Berger, J. S. (2006). Music of the soul: Composing life out of loss. New York, NY: Routledge



Byock, I. (1997). Dying well: the prospect for growth at the end of life. New York, NY: Riverhead Books.


Clements-Cortes, A. (2009). Episodes of relationship completion through song: Case studies of music therapy research in palliative care. Saarbrucken, GER: VDM Verlag Dr. Muller Aktiengesellschaft & Co.


Clements-Cortes, A., Klinck, S.A., (2016) Voices of the Dying and Bereaved: Music Therapy Narratives


DeSpelder, L. A., & Strickland, A. L. (2002). The last dance: Encountering death and dying (6th ed). Boston, MA: McGraw-Hill.


Dileo, C., & Loewy, J.V. (Eds.). (2005). Music therapy at the end of life. Cherry Hill, NJ: Jeffrey Books.

Association quebecoise des soins palliatifs
www.aqsp.org



British Columbia Hospice Palliative Care Association
www.hospicebc.org


Canadian Hospice Palliative Care Association
www.chpca.net


Canadian Virtual Hospice [en]
www.virtualhospice.ca


Canadian Virtual Hospice [fr]
www.portailpalliatif.ca


Chalice of Repose Project - Music Thanatology
www.chaliceofrepose.org


Directory of Hospice Palliative Care Services in Canada
www.chpca.net/family-caregivers/directory-of-services.aspx


Dying Well
http://irabyock.org/books/dying-well/


Government of Northwest Territories - Department of Health and Social Services
www.hlthss.gov.nt.ca


Government of Nunavut - Department of Health and Social Services
www.gov.nu.ca


Government of Yukon - Department of Health and Social Services
http://www.hss.gov.yk.ca/


Growth House, Inc.
www.growthhouse.org


Hospice and Palliative Care Manitoba
http://palliativemanitoba.ca/


Hospice Association of Ontario
www.hospice.on.ca


Hospice Palliative Care Association of Prince Edward Island
http://hospicepei.ca/wordpress/


Life and Death Matters

www.lifeanddeathmatters.ca


Living Legacies
www.legacies.ca


New Brunswick Palliative Care Association
https://www.nbhpca-aspnb.ca/


Newfoundland & Labrador Palliative Care Association

http://www.nlpalliativecareassociation.com/


Nova Scotia Hospice Palliative Care Association
http://nshpca.ca/


Ontario Palliative Care Association

www.ontariopalliativecare.org


Palliative Care Association of Alberta
 
http://ahpca.ca/


Quality of Life Matters
www.QoLpublishing.com


Saskatchewan Palliative Care Association Inc.
www.saskpalliativecare.org


Society for Integrative Oncology
www.integrativeonc.org


Temmy Latner Centre for Palliative Care
www.tlcpc.org


The Healing Cycle
www.thehealingcycle.ca


The International Association of Hospice and PalliativeCare
www.hospicecare.com


The Pallium Project
www.pallium.ca


Threshold Choir
www.thresholdchoir.org


Wellspring
www.wellspring.ca


Canadian Cancer Society
www.cancer.ca


Central East Hospice Palliative Care Network
http://centralhpcnetwork.ca/


Comfort Life
www.comfortlife.ca


Pediatric Oncology Group of Ontario (POGO)
www.pogo.ca


Rainbows Canada
www.rainbows.ca


The Breast Cancer Site
www.thebreastcancersite.com


Venturing Out Beyond Our Cancer VOBOC
www.voboc.org

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